Patient Stories: Video Stars Isiah, Megan and Peter

One of the things we love at Dankmeyer is the appointment when we are able to provide the finished prosthesis or orthosis for a patient that gets them back to improved or first time mobility! These appointments can be joyful celebrations with family and Dankmeyer team members celebrating this significant “step”! As part of this delivery appointment, the patient learns how to take the device on and off (don and doff), how to care for and clean the device, the importance of monitoring the skin for redness or irritation, and discussion of fit and function. A followup appointment is made so that any questions are adjustments can be made after that initial use.

Today we have three different videos to share that show some of these first steps. We are so excited that Isiah Brown, Peter McDevitt and Megan Norton agreed to share this occasion to show others their experience.

Mr. Isiah Brown’s delivery day was an appointment with his prosthetist Robb Brown, CPO, at our North Baltimore office.

In another delivery appointment, Megan Norton receives her orthoses. Her orthotist, Jeremy Halteman, CPO was joined by Resident Danny Weiser (our narrator) at our Baltimore Washington office for this appointment. In this video, we see Megan’s gait before she wears her new orthoses, and then after - so you can see the improvement.

Once more video to share this time. This is Peter McDevitt, also at our Baltimore Washington office, with his prosthetist Jeremy Halteman, CPO. Peter is a bilateral lower limb amputee and we see him both in the office, and in a video from home which he contributed.

Thank you to each of our contributors, Isiah, Megan and Peter, for sharing these very special events with everyone.

Patients contribute to "What is a Prosthesis?" video!

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This summer, Dankmeyer summer intern Cecelia Lamancusa undertook a project to work with some Dankmeyer patient volunteers to film a short video to express thoughts on the topic “What is a Prosthesis?”.

This video was conceived, written, filmed and edited in a very short period of time, as Cecelia’s summer program was only six weeks long. Using her iPad to do some filming herself, along with patient supplied video, and help from Cumberland office staff filming there, and iMovie on her Mac to edit, Cecelia was able to create a lovely piece of work to showcase several patients and the Dankmeyer philosophy that a prosthesis is more than a collection of hardware.

Our thanks go out to the patients who were able to respond on such short notice to contribute to thoughtful interviews in our offices, and to those who were willing but we were not able to coordinate with to meet the short deadline. Thanks to Danny Weiser, our Resident Prosthetist Orthotist, who did the voiceover; Dawn Miranda, Dankmeyer’s Prosthetist Assistant and a lower limb amputee herself; and Becca Frost, CPO and Heather Iman, Patient Services Representative in our Cumberland office who hosted and filmed several patients there.

Without further ado, please watch as Kenny Braitman, Sumner Handy, Joe Loibel and Dawn Miranda share their thoughts and observations around the concept “What is a Prosthesis?”

Patient Stories: John J Heffner

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My name is John Heffner, and I have a disease probably most of you have not heard of. It’s called RSDS - Reflex Sympathetic Dystrophy Syndrome/Chronic Regional Pain Syndrome. It’s a disease that takes control of your nervous system and your muscles, causing chronic pain seven days a week. It can go from mild to severe in an instant.

Back in 2002, I was in a work accident where 1500 lbs of steel came loose, pinning me down, doing a lot of damage to my body. One leg was twisted all around and the accident also injured my back. After many different surgeries and much therapy, I was so glad to get out of my wheelchair - even though I still suffer from relapses which put me back in there occasionally.

To be able to get around I have to wear KAFO (Knee Ankle Foot Orthosis) braces, which go from the top of both of my legs down to my toes. These have been made by Dankmeyer. I also use forearm crutches. I can’t stand for very long, nor can I sit long, but without the equipment that Dankmeyer makes for me every year I would be permanently stuck in a wheelchair. I appreciate the good products they make and quality of care that they provide.

I am working on a fundraiser for RSDS - it is the second annual Virtual Walk Event on June 26, 2021. My team is the “Jay Heffner” team, and you can join me by clicking on this link. - John Heffner


Mr. Heffner’s orthotist is Rebecca Frost, CPO, in our Cumberland area office. Becca has provided some close up images of KAFO examples. You can also see Mr. Heffner wearing his KAFOs in the photo he provided below. Becca explains that a KAFO supports muscle weakness affecting the knee, ankle, and foot. This would include knee buckling, joint laxity or muscle balance causing hyper extension, deformity, etc. Muscles affected would include everything BELOW the hip - the front and back of the thigh, the lower leg, and foot.

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Patient Stories: UPDATE: Dr. Andrew Rubin and Infinite Biomedical Technologies

Dr. Andrew Rubin has shared his story with us before. A patient of Mark Hopkins, CPO, Dr. Rubin is a writer and English professor who has had an amazing, almost unimaginable journey that eventually brought him to the research team at Infinite Biomedical Technologies (IBT). Dr. Rubin, Dankmeyer, and the IBT team have worked together in a collaborative effort to bring about some very positive outcomes in this story. Dr. Rubin is featured in a recent article on the I-Biomed website, which we would like to share here as well. Please click here to read “Andrew’s Story.”

Patient Stories: Kleyton Feitosa

Some people know Kleyton as Pastor Feitosa. That is because he is currently serving as pastor at the Living Word Seventh-Day Adventist Church in Glen Burnie. (All are welcome to visit!) The path to his congregation in Glen Burnie is a long one that covers at least three continents and four languages.  The website for the church summarizes this pretty well:   

“A native of Brazil, Kleyton grew up experiencing and enjoying the cultural diversity of his vast country. He enjoys ministering to people of different culture and ethnic background. His passion for cross-cultural ministry has taken him and his family to minister in four different countries – Brazil, The United States, Egypt and Sudan. Kleyton is fluent in Portuguese, English, Spanish, and knows some Arabic as well.

During his years of work he has served as a teacher, a school chaplain, a youth, associate, and senior pastor. He has also ministered in leadership positions as Conference Executive Secretary and Mission President. Kleyton earned a Bachelor’s degree in Theology from the Latin American Theological Seminary in São Paulo, Brazil, a Master of Arts degree in Missions and a Doctorate in Evangelism and Church Growth, both from Andrews University.

Born and raised in a minister’s home, early in his life he felt called to serve the Lord as a pastor. He is passionate about serving God and serving people and is looking forward to the second coming of Jesus. He is also passionate about his family and enjoys spending time with his two sons, Derek (16) and Malton (14). Kleyton is happily married to his High School sweetheart Delma, an educator and counselor.”

What this summary doesn’t tell us is his journey through cancer and the amputation it led to, and his subsequent choice of a relatively new procedure known as osseointegration to get his prosthesis.

Kleyton was serving on a mission in Cairo, Egypt when he had to return to the US for his health. He had a reoccurrence of cancer in his left leg. After multiple recurrences and several surgeries, surgeons at Johns Hopkins were at the point where they could no longer spare his limb. The resulting residual limb was very short – ending so far above the knee that making a prosthesis was going to be a very difficult effort. Where most patients with amputation would have received a temporary prosthesis in three months after surgery, he could not. He was better off with crutches than the difficult prospect of trying to fit a prosthesis. This was not a satisfactory solution for Kleyton. When his physician mentioned the possibility of osseointegration (OI), he consulted with Dr. Jonathan Forsberg at Johns Hopkins Osseointegration Clinic.

Pastor Feitosa visited an osseointegration clinic at Sibley Memorial in DC., a Johns Hopkins institution, to begin the process.  He went about learning just what osseointegration is. For an excellent video about the technique and its benefits, watch this short video from CBS Sunday Morning. It is an innovative procedure to attach an implant directly into the bone of the residual limb, in order to allow a prosthesis to be attached without the traditional socket.  There are many benefits to this option – solving issues such as excessive sweating, pain, pressure, chafing and skin sores.  Not everyone is a candidate for this, but Kleyton was and chose to proceed with the method.  Paramount to him was regaining the kind of mobility that crutches did not allow.

There are many different types of implants and there was a decision to make as to what type should be used.  Kleyton chose one that Dr. Forsberg developed, which at the time required quite a bit of paperwork and an approval process.  What would normally have taken three months to get your first temporary traditional prosthesis turned into a frustrating two year effort.  Kleyton trusted and prayed for the right outcome, and he eventually received a different implant.   

There are those who might shy away from this process, that is, having something attached directly into your bone.  Kleyton says he felt like he was fighting for his life, and in this context, he had no qualms about getting it done and allowing him to walk again.  He was super excited!  He watched YouTube videos and educated himself about this rare procedure.  Everything he saw and heard told him that osseointegration was an amazing improvement over the traditional socket and was the way for him to go.

The process involved two separate surgeries for this particular style of implant: one to put in the implant and close it, then wait for healing.  Then, because of COVID restrictions he had a delay of six months to have the second component put in – this is the part that shows on the outside where the prosthesis clicks in.  He was still on crutches waiting for this to happen – couldn’t carry anything, or move things around.  He had to be creative to carry things, often wearing a backpack just to carry his computer.  He wanted to get off those crutches and free his upper limbs!

Right after that second surgery you start bearing weight, and in six weeks he was ready for the prosthesis.  The feeling after standing on two feet again was amazing.  It was a process – learning how to walk again.  Those with osseointegration have to take care of the implant site to avoid infection, but gaining mobility was a worthwhile tradeoff for that vigilance.   He also has to be concerned about impact sports because of the implant into the bone.  His surgeon doesn’t want him to run or jog, so soccer is out of the question!  He can go to the gym and work out.   

He is happy to be able to walk again – visit his congregants and stand at services.  Interestingly enough, those with osseointegration have what is known as osseoperception, or the ability to sense the world through the limb, and osseoproprioception, or the ability to sense where the prosthesis is without looking at it.  Kleyton says when he walks on the grass, he can “feel” the grass.  He can “feel” the ground through the prosthesis.  

He communicates often with the worldwide community of others with osseointegration via Facebook and Instagram.  These forums are available for everyone to share information with other osseointegration users and those interested in the process.  One day, when COVID doesn’t control so many of our international travel options, he hopes to visit those people and places.   In the meantime, he would like for others to know that while OI is new, it will change your life for the better forever.  He doesn’t regret having done it, and has never heard regrets from anyone else who has done so.  It has improved his life 100%.

If you are thinking about being an amputee, remember it is not the end of the road, it’s just a detour.  Don’t get discouraged.  We are all on a road trip in our lives, and we all go through detours that are there to teach us life lessons.  We need to have courage and faith and determination. We take the detours, face these challenges, and we just have to come back to the road to continue the journey.  My faith has helped me greatly.

If you want to “meet” and hear his testimony about his cancer and faith, you can watch this video of Pastor Feitosa on YouTube by clicking here.